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Fact vs. Fiction

Monday, November 6th, 2006

Yes, we’re still here. We’re still alive and still trying to save and earn our IVF money. I can’t tell you how totally shocked I am that a month has passed since I last posted. I’m equally shocked that October came and went about as fast as a pizza does in this house. Please accept my apology for leaving everyone out there just hanging.

Since the start of the fall TV season, I’ve become quite a fan of the new show Brothers & Sisters. It follows Desperate Housewives Sundays on ABC. We don’t watch a terrible amount of TV, it’s something we try hard to limit. That’s why we’re cheap and pay for the $12/mo cable!

If you don’t follow the show, it’s about a large, close-knit family in LA who recently lost the father (Tom Skerritt). The mom (Sally Field) manages to keep the family together, all adult children who have a variety of successful careers, some married, one couple with children. A few of the kids work to manage the family’s fruit business which their father left in a huge financial mess. That’s the short and sweet of it, just to give some background.

One of the siblings/couples, Tommy and his wife Julia, have been trying to conceive for sometime. They are probably in their late 20s to early 30s. A cute, successful, fun-loving couple. In last week’s episode, they show Tommy visiting his doctor and getting the results of a sperm sample he gave. He went in on his own, unbeknownst to his wife, to find out if there was a problem. The doctor reveals that Tommy’s sperm count was zero and that he is sterile. Tommy is of course devestated. By the end of the show he tells his wife who proclaims that she doesn’t care, it’s not his fault and that with or without children she’ll always love him. This is really similar to the reaction I had. By the way, I’m totally bawling my eyes out during this entire episode.

The episode that aired last night shows them visiting a sperm bank to get donor sperm. Tommy freaks out about having someone else’s sperm inside Julia and says that he wants a baby that is from his blood… as we all do. The show moves on to show him asking his brother, Kevin, if he would be willing to donate. I start bawling, again! (We received an email from a reader who told us that after many years of unsuccessful attempts, his wife’s sister donated an egg. They now have a beautiful little boy!!) By the end of the show, Kevin and another brother, Justin, both donate sperm and everyone agrees to keep it confidential so no one will ever know who the bio-dad is.

I like the story line and I’m so glad that they’ve brought the subject of infertilty into mainstream, primetime television. It’s an issue that can always use as much attention as it can get. My only frustration is how far from the truth a lot of this, and while this would be an opportunity to educate people about a subject that is so hush and most people know very little about, it’s just going to help people who don’t understand infertility to understand it less. Our society is ignorant to infertility. Now, before my inbox fills with hate mail, let me clarify. Ignorance just means you have a lack of information or you’re not educated in a subject. Six months ago, I couldn’t have carried on a conversation with anyone about IVF and infertility, because I was ignorant. I would hope that sites like ours and TV shows can help educate the general public, but much of the story line is far from true.

Tommy wouldn’t have had just one trip to the “Squirt Cup”, as I like to call it!! He would have had several exams and tests to confirm that he is sterile.

He and Julia would have visited with their doctor, read up on the subject and their options and come to terms emotionally with the diagnosis- all of which takes a lot of time.

Per my previous statement, they would have never ended up at the sperm bank so quickly.

As we’re all aware, the process is unbelievably expensive. They would have had to work out the finances.

Asking his brothers to donate and having them do so so quickly seems far-fetched as well.

I could nit-pick the storyline to death. I know it’s fiction and I know for the sake of keeping the story moving it has to, well, keep moving. And hanging up on the details of what real IVFers are living would bore the viewers to tears. Unfortunately, it is a very real story for Shelton and I, and for so many of us. I remember when Monica and Chandler on Friends were going through their adoption and how fast the process seemed and how they so effortlessly found a baby. I didn’t even really know about all this infertility business back then and I knew that wasn’t right. And my heart went out to so many couples who have tried for years and spent thousands of dollars and had no success, couples I know personally. How frustrating that must have been to watch- again, filling society with misinformation that doesn’t educate.

Like I said, I’m excited to see this subject in primetime. I hope it at least peaks curiosity in people and they try to learn more… try to learn the truth. What an opportunity to showcase the financial hardship that infertility brings and gain momentum for insurance coverage. But that’s a boat that’s probably been missed.

If it Has to Have a Reason

Sunday, October 8th, 2006

I feel like most of what I have written about on this site has been medical. We’ve spent so much time with doctors this past summer that it seems like that is all the information we’ve shared with you. In my early posts, I recapped the first few weeks and months of learning about our infertility and how there were so many sad days. I don’t know if we were just feeling better about it or ignoring it, but once we began working on BabyOrBust everything seemed to get a little better.

I definitely have my down days. Days when I see the cutest families grocery shopping or couples pushing a stroller on their evening walk. Being perfectly honest, my first nephew was born in May and the day he came was so painful. I was unbelievably happy for my brother-in-law and sister-in-law and from the first moment I met him I’ve called him the love of my life! He’s perfect. I don’t think I was even jealous. Just something about someone so close being able to effortlessly have a baby- wondering when it would be my turn.

My sister-in-law and I were talking a while back and she told me that she and my brother-in-law had been talking one evening. They believe, just as I do, that everything happens for a reason. And while I can’t remember what reason it was that they came up with, I remember my response. I told her that it was for Shelton and I to learn patience. This is a trait we both lack and luckily our impatience balances one another. And since that moment, I’ve thought a lot about that. Most things in our lives have come so easily to us; But this, having a baby, one thing we’ve both wanted since the very beginning- God is telling us we’re just going to have to put some muscle into it. I was mad at first. Why not make me work really hard for something really unimportant? Why this?

Simply put, it’s patience. And I can honestly say it’s a lesson I’m not taking for granted. The past six months or so have been the most trying in my life. It started with the infertility, work got a little nuts for a while and most recently my parents divorced. I spent several weeks recently feeling like I was fighting for air. Where did I lose so much control? I’ve done a lot of soul searching since all this started and I’ve found my weaknesses, but I’ve also found my strengths. And it is those strengths that are making me work so hard on improving and changing my weaknesses.

I want this experience to mean something, I want to learn so much about myself, my marriage and this life. I mean, if God is going to make me work so hard to find my way to our baby, we might as well make it interesting, right?

Someone recently gave me a copy of 7 Habits of Highly Effective People. I reluctantly started reading it, months after it was given to me. But I quickly pulled out my highlighter and started marking page after page. This isn’t just another self-help book. I was reading and found it was relevant to my work, my marriage, my relationships with my parents, my infertility- it was touching every aspect of my life.

So far, the one thing that has really struck me and I already find myself implementing in my everyday life- it’s the idea of your “Circle of Concern” and your “Circle of Influence.” The COC is a big circle, within in it is a smaller circle that holds the COI. In my circle of concern, I have my medical bills from surgery, my parents divorce, my infertility, work issues, school shootings, the price of gas, laundry, etc. I’ve concerned myself with all of these things, they are all stressers. But most of them are out of my control, nothing I can fix or change. Where my energy should be focused is the circle of influence- in here I can put the laundry, what we’ll have for dinner this week, work issues that directly affect me, many aspects of my infertility, living more healthy by diet and exercise, etc. These are all things that I have a direct influence over and can actually make a change in. All the other stuff just adds stress and drama that I don’t need, and no matter how much sleep I lose or anxiety I build, nothing is going to fix them or make them go away.

So I’m working on a little soul makeover. I want to be more positive, patient, smarter, friendlier- just an overall better person. I’ve always said that one of the things I love most about Shelton is that everyday he makes me want and work to be a better person. I tease him that he is so much better than I am, and in so many ways he is. If we were ever playing bad cop/good cop, he would be good cop. He has held my hand, soaked up my tears and held me close so much this summer. While most days he didn’t know what to say, and I don’t know what he could have said that would have made any of it easier, he was there.

The point to this long rambling post is this- whether you’re dealing with infertility, or any number of other major life events, find the meaning behind it. Why was this task brought on you? What can you learn from it to make not only the situation easier to deal with, but to make you and your life better? The many, many women, and some men, I’ve talked to since we started BabyOrBust have all told me about situations where major stress interrupted an IVF cycle or caused them to lose a baby- and I just won’t have it. All of the stress in my life is because of too much attention on my part. I’m saying NO- I won’t let you break me, I won’t let you wear me down and I refuse to let you get in between me and having a baby!!! I encourage each of you facing infertility to do the same. It feels really good.

And, I encourage you to pick up this book. Like I said, I didn’t want to be caught reading a self-help book. But every page so far has been worth it. When we get some free time this week, we need to update a few links that readers have sent to us and I’ll add this book to our book list. (FYI- if you would like to donate, but want a little something in return, any of the books posted under “About IVF” can be purchased through Amazon and a percentage comes back to BabyOrBust).

Internet- thanks for listening.

Overdue

Sunday, October 8th, 2006

A huge thank you is very overdue and so now I’d like to extend that…

THANK YOU to Lesli, Amy, Shellie and Coreen. These women brought us food for the entire week following my surgery. And not just a ham sandwich and a hug- full on dinner with sides and dessert. All of it was delicious and we scarfed up every bite.

This was an incredible gift. My first reaction when I received the offer was to say no. But Lesli said “I know you’re going to want to say “no,” but I’m only going to take “no” for an answer if you’ve lined up a personal chef for the next few weeks”. Who can say no to that?!

Shelton was so busy taking care of me and my not being able to do much without him, eating took a back seat. Thanks to these kind women, we were able to enjoy wonderful meals without any stress or planning.

THANK YOU… THANK YOU… THANK YOU

My Beauty Lies Within

Thursday, September 21st, 2006

Today I made it over to Dr. T’s office for my follow-up appointment from surgery. I’ve been feeling like a champion and back to 100%. The only complaint I’ve had is that my stitches were still in and my pants/panties were rubbing. I probably should have taken two seconds to slap a bandaid on it to prevent the rubbing, but I didn’t.

Dr. T was wonderful as usual. He explains things slowly, intelligently and not like he’s talking down to me. I appreciate that. I told him I was feeling fine and all-in-all I thought the surgery went well. He agreed. We discussed the endometriosis and he told me he didn’t think it was anything that I need to worry about. If it ever showed its pretty head again, it would be a minor case similar to now. So no effect on my fertility and that was an ENORMOUS relief.

He showed me pictures from the surgery. We also have a copy of these. I told him I had framed them and put them on the mantel. The photos are of my very beautiful ovaries and fallopian tubes. He told me that I had two very beautiful ovaries and I had textbook perfect fallopian tubes. I thought, wow, I really AM beautiful on the inside! All joking aside, he told me that all of my parts are perfect, healthy and prime for baby making and carrying. Now I just need to get a baby “all up in”, as a dear friend of mine says.

He asked where we were with Shelton and his urologist, Dr. G. I told him that we needed to pay Dr. G a lot of money (about $4,000) to do the surgery to retrieve and freeze his sperm. He laughed and said OK. He told me we’re totally on our schedule. If we were 45, he’d have told us we needed to have done all of this yesterday. But the fact that we’re 25 and 26- we’ve got nothing but age on our side and said that we can start as soon as we’re ready. So that was comforting- I don’t feel as rushed as I have.

Believe me, I still want to be a mom and make Shelton a dad and start a family more than anything in the world. I think about it daily and cannot wait for that moment that I realize that this little person will call me mommy. BUT- this gives me more time to save and raise money, more time to alleviate some of the MAJOR stressors in my life and get my body in tip-top shape.

I left with him telling me that I would not need to come back until we were ready to start our first cycle. So, that should be in January if all goes as we hope and plan. In the meantime, we’re signed up for the October IVF class.

I will certainly keep all of you updated as we progesss. Hopefully time between posts will be less than ithas been. Thanks for reading and keeping up with us. And thanks for all the positive, encouraging emails. We’ve made so many new friends in this community and together we’re all going to influence big change in IVF treatment, coverage and expense.

All Stitched Up and No Where to Go

Friday, September 8th, 2006

Well folks, I’m home and doing well. Surgery started at 1 yesterday and I believe we were home by about 4. I spent the whole of the evening sleeping and letting the anesthesia wear off. Since the top off our bed stands about chest-high on me, I’ve moved into the futon in the den- since there is no way in hades I can get myself in and out of the bed. Just not yet.

The surgery went really well. Can I just send out huge kudos to Dr. T and the entire surgical staff. Everyone was wonderful. They asked lots of questions, answered all of mine and made me so comfortable. Having had this surgery before, I can say this entire experience has been 100% better than the previous (which was not done here or by this doctor).

For starters, we were actually able to plan and schedule. My last one was done in the ER at 10pm on a Saturday. I’ve known my doctor for a while now and felt comfortable with him, and as usual, he did a great job. The incisions are significantly smaller and look so much cleaner than last time, too. That was the biggest for me. I know it’s part of the deal, but not having my stomach look like someone chopped it up is kind of important.

They found that the cysts were all gone, which is good news. They were also not able to find the polyp they had suspected. Surgery a bust? Not exactly. We’d suspected that I might have endometriosis and sure enough they found it. I’m a high stage I, low stage II. (this is about the only explanation of the stages I can find on the Web. If you know of a better one, please fwd it).

Knowing that we’re now dealing w/ the Endo definitely explains so many things- like the extended periods, painful cramping and additional pain throughout the month, painful intercourse, etc and so on.  And this means I’ll definitely be going on the birth control. My follow-up is in two weeks and I’ll know more then.

So, I’m just kicked back on the futon. We’re pet-sitting my parents’ dog, Tibet the shih-tzu. She has yet to leave my side, just curls up and sleeps with me. I’m taking my Lortab, which is probably the only money-saving part of this surgery. Here’s a tip- I had my wisdom teeth removed last year and still had a full Rx of Lortab (hydrocodone). I also have a near full Rx of Tylenol 3 from a procedure last month. I took these with me to surgery yesterday and the doc said there was no sense in refilling and paying for a new one since I already had these. If you already have these necessary meds on hand, make sure it’s OK with your doctor and avoid the cost of a new Rx.

I walk around a little bit- mostly to go the bathroom or wander into the kitchen. I get tired quickly, but know I need the exercise. Shelton has been absolutely amazing. He takes such good care of me. I’m such a lucky girl!! This morning he whipped up blueberry muffins. My appetite is small though so I ate what I could.

Thanks to all of you for the emails with notes of prayer and well-wishing. It means so much. We are on the upward climb from here. More news to come soon.

Surgery It Is

Tuesday, September 5th, 2006

I got in touch w/ Dr. T’s fabulous staff today and they have me booked for surgery on Thursday afternoon. I went in for lab work this afternoon to make sure I don’t have any weird diseases that would render me inoperable. I’m going to get in touch with the woman who manages insurance tomorrow and clarify a few questions and get squared away on our cost after insurance. That new FSA money is going to come in handy right about now!

Should be pretty simple- a laproscopy and a hysteroscopy (There is also this link, and I’m really only including it because- HOW SCARY IS THAT PHOTO?!).

This should alleviate the cysts I’ve had taking up residence on my ovary all summer. Those seem to be the only things reproducing down there. We should also find what is causing these obnoxious periods and make those a distant memory. He did say that following surgery I’ll most likely go on birth control until we’re ready to start the IVF. This is for two reasons- one, will stop the cysts and two, will get my schedule on track with theirs.

We also decided to cancel the IVF class we were scheduled for Saturday. I don’t believe I’ll be up for going to class and figure someone else with a cycle sooner than ours can have our spot. We’ve actually spoken to a few people who were going to be in that class via email and were looking forward to meeting them. Hopefully they’ll send us a note telling us about their experience.

Will definitely post and let you know how everything goes. I’ll see you back here Thursday or Friday with new scars!